A New Perspective

Last Wednesday I woke up with a migraine. This is a semi-normal occurrence so I wasn’t worried at first, but then I went to turn on the lights because it was on the dark side and I realized something was wrong – I couldn’t see… I decided to take some medication for my headache and just chill on the couch, hoping my vision would clear with the pain relief. Well…it didn’t improve, but I still wasn’t worried because I thought of all my friends who get migraines and tell me how their vision is all distorted when they have a really bad one (I have a high pain tolerance so don’t actually recognize the true level of pain I’m in), so I thought “maybe that’s the problem.” Huib got home in the evening from work and I told him about my vision and he said we’d just watch some TV together and see how things are in the morning – it wasn’t any better…

I called my sister Thursday morning and asked her if she was working. She wasn’t, so we headed to the hospital in Timmins to see if they could help me out. When I arrived they had me into the emergency department within an hour and I had a CT scan just a few hours after checking in with triage. The CT scan came back clear, but the doctors were still concerned about my vision and headaches so they wanted to admit me so I could get an MRI done within 24 hours rather than the usual 2-3 weeks. I really didn’t want to stay in the hospital, but my sister convinced me to do it and stayed the night so I could keep Cessna as well. Huib arrived the following afternoon and I was told I would need to stay another night because there was no room in the MRI schedule until the following morning. Brandi went home late Friday night and Huib stayed with me and Cessna (she was amazing, just sleeping on my bed the whole 48 hours). I had my MRI early Saturday and was discharged around 3pm after the results came back. The doctors are still not sure why my vision has deteriorated and whether it will return, but for now they are just treating the symptoms of the headaches.

I’m so glad to be home and out of the hospital. It’s amazing to see the varying level of care you can receive from different nurses. I’m so thankful that Brandi and Huib stayed with me the whole time because I’m not sure I would have survived on my own. My evening shift nurses were great both nights I stayed, but the day shift nurses on both Thursday and Friday were horrid!! My Friday one was a male and he was so stupid and lazy, I think Huib wanted to slap him a few times – he (not Huib) is an example of why some people don’t like male nurses. I think the worst thing he did other than to just cancel my call bell when I rang without coming to see what I wanted, was when he told my neuro-ophthalmologist in London that I was no longer at the hospital and must have been discharged. He was my nurse and I was literally two big steps from the nurses’ station!! Luckily my ophthalmologist and I were trading e-mails back and forth so when he told me what the nurse had said, Huib went over and clarified with them that I was indeed still admitted and that my doctor wanted to speak to the E.R one in charge of my care. My neuro-ophthalmologist was amazing and made sure to get the Timmins doctor to do all tests and send him the results as soon as they came in. even though it was a weekend, he still checked in via e-mail with me and gave me updates on what he was hearing from Timmins. Thankfully I had someone taking good care of me since my neurosurgeon in Hamilton really didn’t seem to care about what was happening, but that’s a whole other story and the conclusion is I’ll be getting a referral to a different one that my ophthalmologist has recommended.

It’s been an interesting 5 days. I’ve gone from seeing very little – through only 3 pin holes in my right eye – to seeing barely anything – sometimes even nothing. I’ve told some friends through facebook about my ordeal and called my aunt in London yesterday, but I’m not sure what to tell everyone. In the mornings I wake up and it’s almost complete darkness, I can’t tell if the lights are on or off and when I’m outside with the dogs I can’t tell if it is sunny or cloudy. At some point through the day though, not sure if it is related to the level of pain, my vision clears a bit. It’s like looking at the world through a not yet defogged car window I guess… I can see things around me, like the TV, the opening to our bedroom, the fan on our ceiling, motion on the TV, etc, but I can’t always tell people exactly where it is I see it (my hand-eye coordination is off or something) and at times I’m not even sure I’m seeing what I think I am – could it be my mind seeing what I know should be there? I’ve always wondered what it would be like if I ended up losing the rest of my sight and I guess I’m getting that glimpse or could it be forever…?

I guess time will tell, but for now I’m trying to move on and figure out how to do some of the things I enjoy.

Comments

  1. I hope they figure out what’s going on and that you get your sight back. Sound like you have an awesome neuro-ophthalmologist.
    My prayers are with you.

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